LETTERS – The world commemorates World Down’s Syndrome Day every year on March 21.
The 21st day of the third month was chosen because it symbolises the uniqueness of the 21st chromosome, which is present in triplication (trisomy), a condition in which chromosome 21 has a third (an extra) chromosome.
The presence of three chromosomes on chromosome 21 gives birth to people with Down’s syndrome.
This day is observed to increase awareness of Down’s syndrome and to honour people who have these characteristics. Activities and projects are viewed as critical components of what it means to have Down’s syndrome and how people with Down’s syndrome contribute to our lives and communities.
These raise awareness and educate people about the importance of strong care, good communication, open knowledge and inclusive consultation, all of which contribute to the successful participation of people with Down’s syndrome.
A child with Down’s syndrome can succeed at a school where inclusion is valued and promoted as part of the culture, and where the diverse learning needs of all children are recognised and addressed.
The Down’s Syndrome Society of Kelantan has helped to create awareness in educating Down’s syndrome children.
However, more should be done to reach out to schools, employers, healthcare experts, media, NGOs and government agencies to broadcast the message and make improvements.
We hope the government will recognise Down’s syndrome children and young people as a distinct group with distinctive developmental and educational requirements so that they can live like normal people.
We also hope that children with Down’s syndrome around the world will have the same dignity and wellbeing, as well as the same freedom and potential, to pursue their goals just like everyone else. So, let’s fight for fair opportunities for people with Down’s syndrome, and to reach out to leaders to bring about change.
Source: Amira Nabilah Mohd Rapi, Nor Rafida Mohd Seni & Professor Zilfalil Alwi (NST.COM.MY)
